Arthrogryposis Multiplex Congenita Awareness Day

WHEREAS, arthrogryposis is defined as multiple congenital joint contracture which is when multiple joints are stuck in one position and have very little flexibility; and

WHEREAS, arthrogryposis is an umbrella diagnosis with many syndromes and subtypes and occurs in one in 3,000 live births; there are currently 400 identified types such as amyoplasia, distal and multiple pterygium/escobar syndrome; and

WHEREAS, arthrogryposis is caused by an unborn baby not moving properly during fetal development; and

WHEREAS, the different types of arthrogryposis include: amyoplasia (a non-­genetic type), which is due to the muscles failing to develop; and multiple pterygium/escobar syndrome (a genetic type), which occurs when the messages that impact a person’s muscle movement are affected; and

WHEREAS, individuals born with arthrogryposis require stretching, various therapies (physical, occupational, speech and others) and some surgical interventions that can help improve a person’s independence level and quality of life; and

WHEREAS, on June 30, 2013, families across the world will be wearing the color blue to honor those affected by arthrogryposis; and

WHEREAS, increased awareness and expanded knowledge of arthrogryposis and its impact on patients’ quality of life will allow the community at large to better support people who struggle with the challenges of this disorder:

NOW, THEREFORE, I, Robert Bentley, Governor of Alabama, do hereby proclaim June 30, 2013, as

Arthrogryposis Multiplex Congenita Awareness Day

in the state of Alabama.